|
My name is Debbie Adams.
My mom was diagnosed with Ovarian cancer in May.
She has and still is going through a horrible battle of
trying to save her life or at least live long enough to see her 6 grandchildren grow up.
My mom is 51.
There is no history of ovarian
cancer in our family.
Mom is a registered nurse, RN, and does her normal check-ups every year. In
December of 1998, she was feeling tired and bloated and had been increasing in her weight
for a few months and knew she had a check-up scheduled for January, 1999.
"Normal" exam
In her check-up, she had all the normal routine of things done that is considered
"normal" for all women. Her examine was completed and everything looked
"normal". In April, she developed some pressure in her lower abdominal area and
the pressure persisted and turned to extreme pain. She contacted the doctor.
They did a TVU (transvaginal ultrasound) on a
Wednesday and told her she had a benign cyst that looked as though it had wrapped itself
around her ovary. If the pain persisted, they may have to do emergency surgery and remove
the cyst. My mom is very intelligent and just felt that something was not right so at that
moment, she asked them to take a CA 125 blood test to reassure her. Now just for
reference, ovarian cancer is not in our history that we know of, and she had no reason to
feel that this was cancer at this point, but the type of pain that she was feeling, she
knew that it was not going to go away and it was more serious than the doctors would
admit. By Friday, she had not heard her results and went to work on Saturday at the
hospital. She was in such pain that she couldn't stand it and was going to leave but
thought she would look up her results at the hospital.
The CA 125 normal range is 0.00 to 35.0.
Her test results were 1709.
My mother was couldn't believe what she was reading and knew she had cancer. She
called her doctor immediately and wanted to know why she had not been informed of her
results. The doctor said that it was because the score was so high that they wanted to
redo the test to make sure of the results. This was Saturday and by Tuesday, my mother was
in a 6- hour surgery to have a total abdominal hysterectomy with staging and remove both
ovaries. They later staged her cancer as stage 3 which means the cancer had not spread to
other organs. They had to leave some of the cancer because some of it was too close to the
aorta and there were microscopic cancer cells that they were not able to get because of
other reasons.
Now the cancer has spread to her lungs
and it is difficult for her to breath. She can't do much because it is in her
lungs and just breathing is hard for her. It has been a very difficult 7 months. In
December, she was in the hospital for 9 days for a pulmonary emboli and then was out for 7
days and then back in again for another 2 days. We just thank God that she was able to
come home for Christmas.
Ovarian cancer is a horrible disease
and is so silent that by the time you have symptoms
it is too late.
Unfortunately, we found out about all of this when it was
too late. Since it is my mom who has this, I wanted to make sure that I was checked
thoroughly to make sure that I did not have any cancer starting. I first went to my own
doctor and the nurses were trying to tell me that it was not necessary for a CA125 and
ultrasound because I was so young and also there was no other history other than my mom. I
wouldn't take that as an answer and went to my mother's doctor. She, of course, had done
the surgery and knew how bad the cancer had spread and felt that all of those tests were
essential to my piece of mind and health. I had them done and so far things check out but
I am on the high end of the CA125 at 24.0.
The only thing that I think my mom and I can stress,
is that no matter what a physician says, if you feel that is something wrong but
just can't pin point it, don't take the doctor's word. Go to another doctor or go to
specialist who knows more about the female body. My mom also has notice that when she does
go to her gynecologist, there are no pamphlets warning women of ovarian cancer, the
symptoms or preventive care to protect them. Also as she has reflected on her life and her
check-ups, they never informed her of ovarian cancer. The only way I found out about it
was because my mother is now battling it and may die.
It is a horrible way to find out how I can save my life by having to see my mom go through
so much and possibly die from this. If there is anything my mom or I can do to help in
this battle of ovarian cancer, please call on us.
Thank you.
Deborah Adams
Seattle, Washington

More news from the
Front Lines of Ovarian Cancer
back
to OSP
|


cilck here to get a FREE newsletter & join our health, education, craft, cooking &
other support groups
Ovarian Cancer Facts
Signs & Symptoms of Ovarian Cancer
by Sue Spataro, RN, BSN
Ovarian cancer is our most deadliest gynecologic cancer. It ranks number 4 in the
cause of cancer deaths in women. Most of us have a less that 2% lifetime chance of
developing ovarian cancer. But, every year over 25,000 women are diagnosed with ovarian
cancer. But once diagnosed with ovarian cancer 75% of women will die within 5 years of
their diagnosis. Early detection is the key. How can you tell if you have it?
No Time to Die
by Liz Tilberis, Aimee Lee Ball
 
Liz Tilberis, the editor in chief of Harper's Bazaar magazine, was at the
pinnacle of her career when diagnosed with ovarian cancer, one of the disease's deadliest
forms. ("When ovarian cancer is detected early, the cure rate is high: at least a 90
percent five-year survival rate for Stage I diagnosis. At Stage IV, they tell you to go
home and get your affairs in order," she writes.) In 1993, the day after holding a
gala holiday dinner for the likes of Ralph Lauren and Donna Karan, Tilberis underwent
exploratory surgery that revealed her cancer was at Stage III. Since then, she has
survived three recurrences, massive doses of chemotherapy, and a bone marrow transplant.
Tilberis's book is notable not only for the sanguine humor
which she injects throughout, but also for her honesty regarding what she suspects was the
cause of her cancer: fertility treatments with the hormone-stimulating drugs Clomid and
Pergonal, which she points out are still widely used. (She never conceived a child, but is
the mother of two adopted sons.) Tilberis is especially cutting with her descriptions of
her coworkers' chilliness and lack of empathy when she first returned to work. It seems
that AIDS causes notwithstanding, the world of fashion is still incapable of admitting
there is suffering in the world. Tilberis also deserves praise for confessing that her
infertility is due to fallopian tube scarring from pelvic inflammatory disease--often
caused by sexually transmitted diseases.
No Time to Die and Liz Tilberis are inspiring. While her
cancer is in no certain way vanquished, Tilberis chooses to treat it as a chronic
condition, not a killer. She's made it her mission to use her magazine platform and her
position as president of the Ovarian Cancer Research Fund to raise awareness of a
complicated and frightening--but possibly preventable--disease. This book is as much a
tale of survival and sang-froid as it is an excoriation of the cruelties of the two-faced
world of fashion.
Ovarian Cancer Awareness
What are the signs and symptoms of this hidden killer. Early
diagnosis is the key. Find out more
Breast Cancer Facts
separating fact from fiction
by Sue Spataro, RN, BSN
There is so much in the media that scares the living life out of us. Breast
cancer is one topic that manages to catch all of our attention. The media report
all the bad news and statistics but neglect to tell us what they really mean.
I'm Too Young to
Get Old:
Health Care for Women After Forty
by Judith Reichman
 
Reichman has practiced obstetrics and gynecology for more than 20 years. From
that extensive background, she addresses the most problematic aspects of health and aging
for women over 40 in this reader-friendly book. She details the facts of contraception and
fertility for midlife women and the risks and complications involved in later-life
pregnancy and delivery in the book's first section, and in the second, she examines
menopause, providing an unusually thorough discussion of how hormones work and their
varying levels during perimenopause as well as detailed scrutiny of hormone replacement
therapy and its alternatives. |